Final loading dose... DONE!

Sep. 21st, 2017 04:45 pm
stonebender: (Default)
[personal profile] stonebender
I’ve had trouble writing the last two posts. I’m a slow correspondent, what can I say? I’m not sure this post gets to what I wanted to talk about, but it’s close. I may work on it some more, but I thought letting people know what’s going on was more important than perfect communication.

On September 5th, I received my last loading dose of Spinraza (Huzzah!). After six tries and four successful injections, it seems that I have learned how to advocate the best circumstances for success. Pain meds help in allowing me to stay on the table longer and the longer I can stay there, the more chances for a successful lumbar puncture. The pain meds also help with recovery. The first few times we tried an LP, successful or not, it took several days for me to stop feeling sore. I also make sure I’m not put on the table until the radiologist and doctor are ready to go. That way they have the most time to get the needle where it’s supposed to go with as little pain as possible. So although the last loading dose took a couple hours before it was successful. It was successful!

Most of the staff were new to me. I started explaining what needed to be done and the staff were paying attention. After a bit my morning worker started taking over just by saying things like, “Wasn’t Guy’s wheelchair parked over there and you brought the lift over here?” Basically, asking questions that clarified my instructions. After a bit it was fascinating to watch. She knew me and she has been through this dance with me several times now. She knew what had worked. So I let her take over the logistics. As usual, the staff followed directions and were concerned with my comfort.

I have been paying attention to any physical changes since the treatments began. I didn’t feel much at first. Except that my breathing is easier. I’m worried that the improvement is just a placebo effect. I want to feel like all this effort amounts to something. Seems like the beneficial effects of the treatment are so subtle. [personal profile] loracs and I will be the only ones to notice.

I’m really looking forward to the next pulmonologist appointment. Then I will have some objective evidence that I’m actually improving. Until then I keep racking up observations. Along with stronger lungs, [personal profile] loracs has noticed the grip strength in my left hand is stronger. I feel some strength in my arms, but it’s not like I can suddenly raise my arm above my head. It seems like I can gesture a little more. I think I have a little bit more motion in my right hand when I use my trackball. Nothing I couldn’t do before, but it seems like I can do it longer and with less fatigue.

After the third dose, I noticed that my neck seems to be stronger. Driving in the car is always a bit of a roller coaster ride for me. I can’t hold my head very well, so it flops around a bit. I try to ride in the car in a reclined position, but that cuts into the sightseeing. I usually alternate between reclining and sitting straight up. Still, my head flops around more than I like. I’m noticing now that I can keep my head up most of the time. I also noticed that I can lift my head off the bed if it is at a little angle. I can’t lift it from completely prone. I don’t think I could lift it at all before the Spinraza.

On the possible negative side, I’ve noticed some tension headaches since the fourth dose. They don’t last long and they could just be hay-fever. The pain is similar, but I notice it when I’m being impatient or a little pissed. I am not at all sure if this is related to the drug. That’s about all I’ve noticed at this point. I think I’ll be getting a follow-up appointment in the future. So they can see where I’m at and decide what to do. I may get some physical therapy. (So I can look buff.)

On the reimbursement front, I received one of those “this is not a bill” statements from Medicare. It seems to say that all the hospital stuff is covered, but it doesn’t specifically say anything about whether the Spinraza has been covered. It even says that Connie’s services are covered but nothing about the drug. Connie seems optimistic they will get reimbursed. I’m disconcerted, but I’ll cope. Thanks everyone. I’ll keep you in the loop.

offline

Sep. 20th, 2017 07:07 am
morgandawn: (BSG Don't Even Start Kara scifijunkie)
[personal profile] morgandawn
 injured myself last night. walking, standing, sitting etc is very painful. may be offline for a while.

Calls To Kill TrumpCare

Sep. 20th, 2017 06:12 am
morgandawn: (Art Noveau Blue)
[personal profile] morgandawn
Posted in full at: http://ift.tt/2ycGRAA on September 19, 2017 at 10:40PM

If you live in a Democratic state you can help.

.....if you live in a state with two Democratic Senators who support the ACA, you may be asking yourself: what more can I do? How can I influence persuadable Republicans in red states who may be on the fence?

Well, we have an answer! We’re bringing back the blue state/red state calling tool from the last healthcare fight.

https://www.trumpcareten.org/calls-to-kill-trumpcare

Here’s how it works:

  1. Sign up below to make phone calls from our peer-to-peer dialing tool. You’ll get an email confirmation with a login, password, and URL to sign into our system. Once signed in, you can start making calls immediately—and we’ll give you a script to make it as easy as possible!

  2. Next, you’ll call a voter in a key state with a swing Republican Senator. These folks are your friends—they attended the Women’s March, they’re standing up to #DefendDACA, and/or fight for progressive causes.

  3. You explain how they have power now. You’ll remind them why the continued fight against TrumpCare is so important—and why they have particular power in this moment.

  4. You ask them to use their power. You’ll ask them to call their senator in opposition to the bill, and to share their own reasons for opposing it.

  5. The tool connects them to their Senator’s office. The call tool will allow you to automatically patch them through to the Senators’ district offices.

It’s super easy: more than 1,000 Indivisibles in blue states made 100,000 phone calls to constituents in our target states in the final two days before the healthcare vote in July. And we won. We can win this time, too.


Tags:not a reblog, activism, PDWCrosspost2, save us

Tumblr post (this is likely a reblog, and may have more pictures over there)

Call Your Senator: Weds Sept 20, 2017

Sep. 20th, 2017 06:12 am
morgandawn: (Art Noveau Blue)
[personal profile] morgandawn
Posted in full at: http://ift.tt/2xg1UTw on September 19, 2017 at 10:30PM

“Friend posted this one. I haven’t heard anything more recent or accurate. So, default mode: CALL! 

They are just one vote shy of repealing the ACA. If any of these Senators represent you, call them NOW. This is an all-hands-on-deck moment. 

if you have family or friends in these states, ask them to call. Or use Resist Bot to fax their Senators.  Text RESIST to 50409 

McCain 202-224-2235 (AZ)

Murkowski 202-224-6665 (AK)

Collins 202-224-2523 (Maine)

Portman 202-224-3353 (Ohio)

Capito 202-224-6472 (West Virginia)

Alexander 202-224-4944 (TN


Tags:not a reblog, activism, PDWCrosspost2

Tumblr post (this is likely a reblog, and may have more pictures over there)

But Wait There's More

Sep. 19th, 2017 09:56 pm
morgandawn: (Default)
[personal profile] morgandawn
What if you could get color like this.....






but at the cost of having wavy lines like these.....






morgandawn: (Art Noveau Blue)
[personal profile] morgandawn
Posted in full at: http://ift.tt/2xu7Ev7 on September 18, 2017 at 07:06PM

Please call your reps

Tags:not a reblog, activism, PDWCrosspost2

Tumblr post (this is likely a reblog, and may have more pictures over there)
morgandawn: (Vid Free! As Free As The Wind Blows...)
[personal profile] morgandawn
 I am working with a third party to convert VHS tapes onto DVD. At home, I only use the copyguard removal tool when the video won't  transfer  (note: most of the tapes are not protected, just really crappy quality). The reason is that when the tool is turned on, it caused horizontal "tearing" or wavy lines (think really bad Twilight Zone effect) on all clips.  So I use it only sparingly when I have no other choice

The third party is using a Time Based Corrector which also serves as  copyguard remover (if needed). We're getting the same problem - even if a tape has no copyguard on it, if the tool is turned on, it causes wavy lines. There is no way for him to capture without it (his setup is fixed).  

I'd love another set of eyes on the results to decide whether to proceed. And of course any suggestions.


  

edited: based on feedback, I tried adding a different TBC/clarifier (Panasonic DMR-ES10), inserting it before the Canopus capture card. This stabilized the image but introduced  a red/purple color shift across the clips. Again, this is not copy-protected tape - just really bad source.

What this tells me is this

1.An automated approach may not be feasible - we either live with jagged lines through all the vids or red/purple color shift through all the vids. Or we stick with the labor intensive method - run the video until it stops, mark the location, proceed and then return to decrypt the "bad vid" at the end.

2. I need to try different TBC/copy guard removers before confirming #1. There are two more - one is the Sima (on loan) and the other is the 
ATV-8710 that I will have to buy.  This second one does not have as good track record removing the wavy lines as the Panasonic DMR-ES10. One online reviews say that it handles wavy lines very much like the TBC that the third party uses (DataVideo)

3. If #1 turns out to be correct, I may not be able to use a third party because all they can do is push a record button and cannot make adjustments.



Links: all copyguard removal tools degrade the picture. So using them for all source may be counter-productive.

Digital copyguard removal tool recs

stand alone DVD recorders may be better for bad quality video

but if you need to get an external TBC the ATV-8710 might work

morgandawn: (Art Noveau Blue)
[personal profile] morgandawn
Posted in full at: http://ift.tt/2w2EZto on September 17, 2017 at 04:47PM

Legends of Princess Kneesaa http://ift.tt/2jzfe1S

Tags:IFTTT, Fauxthentic History, DWCrosspost

Tumblr post (this is likely a reblog, and may have more pictures over there)
morgandawn: (Vid Free! As Free As The Wind Blows...)
[personal profile] morgandawn

Currently, there are few fan-run streaming video sites that offer hosting for fanvids. Vidders.net, which is run off the Ning platform, offers members uploads at 15 fps. VidderTube, which is also run by the moderator of Vidders.net, offers members HD/30fps uploads for a modest annual fee.
 
Both Vidders.net and VidderTube are the only fan run alternatives to YouTube that are white listed for embedding at AO3.   Because they're low profile, they are able to offer YouTube vidders a haven for streaming fanvids that are  blocked on YouTube. Both networks are set up to archive and back up any content hosted on their network. 
 
 
Projects that Vidders.net/VidderTube have worked on this year:
1. Set up alternative streaming for a vidder whose vids had recently been blocked on YouTube. 
2. Set up a code to backup and/or import a vidder's entire YouTube channel to their network.
3. Offer YouTube vidders the ability to backup their channel video comments.
4. An intuitive cataloging system to filter vids by numerous criteria
5. The ability to distribute & view vids through smart TVs using Kodi/XMBC

Vidders.net current operating expenses is around $650 a year and is funded in most part by member support. Annual costs vary depending on the Ning service plan that is selected.

VidderTube is funded by memberships and the current annual cost is $250 (this cost increases with more streaming/downloads).
If you are interested in supporting Vidders.net's efforts by making a donation go here vidders.net/main/authorization/signUp (you can sign up using Google, Facebook, Twitter, or You Tube Social Logins as well as creating a Vidders.net account)

If you'd like to become a member of VidderTube to gain access to HD uploads, you can sign up for membership at Vidders.net as well by using the same link above.

morgandawn: (Art Noveau Blue)
[personal profile] morgandawn
Posted in full at: http://ift.tt/2fdA99k at September 17, 2017 at 10:59AM
The GOP is attempting to shove through the affordable care act repeal in the next two weeks. They are close to succeeding. Call your Senators now.

#GrahamCassidy ends #ACA pre-ex condition protections, defunds @PPact, charges older Americans 5x more & takes away vital benefits

Call your Senators 866-426-2631 #SaveMedicaid #VoteNo

To quote one mother of a disabled child: “ Because pro-life means fighting tooth and nail for every life, the broken and the whole, to be as full and meaningful and rich as possible.”

@aliranger29’s Tweet: https://twitter.com/aliranger29/status/908838780823592960?s=09

Tags:Affordable care act, aca, medicaid, disability rights, pdwcrosspost
Tumblr post (this is likely a reblog, and may have more pictures over there)
September 17, 2017 at 10:59AM
morgandawn: (Art Noveau Blue)
[personal profile] morgandawn
Posted in full at: http://ift.tt/2haaKu9 on September 17, 2017 at 08:10AM

Pirate Bay uses visitors’ CPUs for mining digital currency Tags:not a reblog, DWCrosspost

Tumblr post (this is likely a reblog, and may have more pictures over there)

Database Design Question

Sep. 16th, 2017 05:40 pm
morgandawn: (Cat Sleepy)
[personal profile] morgandawn
 If you are designing an Excel database with creator names how do you handle entries where the creator is listed as "possibly Morgan Dawn"? 

I can think of several ways...

Creator:  Unknown-Morgan Dawn might be best.  That way if you sort, all the Unknown-Morgan Dawn works will still be listed together.  They won't be listed next to the confirmed Morgan Dawn works, but still searchable. If and when the ID is confirmed it could then be moved to "Morgan Dawn" or even updated to "Mary Sue Lamb". It could also handle multiple guesses: "Unknown-Morgan Dawn-Mary Sue Lamb

The idea is to leave "Unknown" for those were we have no clue, and keep the ones where we are guessing in another grouping.

The other way is to have a second column that would add a Y/N in  "Presumed Creator" but I don't like separating data. Plus one more cell to fill in is a pain.


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